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Disorienting experiences in care homes

My Grandma lives in a care home and has mild-moderate dementia. Because of coronavirus, the staff must all be dressed in full PPE. This means she cannot see their faces and so does not recognise the people around her. Being surrounded by people in such strange outfits must be very scary. Residents are also being confined to her room and only being allowed into the common areas in shifts. This prevents grandma from socialising with her friends, which is what she enjoys most. Although I...

by Natasha Morgan (Admin)
3 days ago

by
Natasha Morgan (Admin)

3 days ago

A change in routine

My mother-in-law has early-onset Alzheimer's. She can find new situations unsettling and so finds comfort in her daily and weekly routines and regular activities, such as swimming. With shops, services and leisure facilities shutting down, she doesn't understand why she can't do the things she normally does. How might we provide structure to people's days when their regular activity is taken away?

by Natasha Morgan (Admin)
2 weeks ago

by
Natasha Morgan (Admin)

2 weeks ago

Thank you, Alice, for sharing that challenge, and for your suggestions, Jennifer. I have also heard people express similar concerns around losing the ability to drive or get about independently. Does anyone have thoughts on this, or know of solutions which might help?

6 days ago
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Keeping my parents safe

Diana, thank you so much for sharing your story and I'm sorry to hear you are in such a difficult situation. As art of our upcoming work we will consider what more we can do to help support carers of people with dementia.

6 days ago
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No respite

Thanks Fiona, that's a really interesting point about the attitudes of different generations. I wonder if there are any existing resources about mental health for older people that we could build on.

1 week ago
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What happens if care home staff are sick or in isolation

Thank you Helen and Isabelle.This is clearly an important topic. As a team we will consider what we might be able to do to help address it.

In the meantime, please do share any further thoughts, experiences or ideas for solutions.

1 week ago
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Reducing anxiety about the future

Thank you, Zoe, for bringing this resource to our attention, and your offer of support. We will consider what we can do to make use of this alongside other innovations and will get in touch as appropriate.

In the meantime, does anyone else have thoughts on how this might be useful in the current situation?

1 week ago
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Facebook group

Thank you for letting us know about this, Vicki. Are there any challenges which are coming out particularly strongly?

1 week ago
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Coping mechanisms for plwd and Corona virus

Thank you for sharing your concerns, Chris. Alzheimer's Society have shared a list of ideas for things to do while you are in isolation https://www.alzheimers.org.uk/get-support/cor...living-dementia. However, there may well be more we can do to innovate new solutions.

Does anyone else have this concern, and/or any thoughts on potential solutions?

1 week ago
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getting to grips with technology - NOW!

Thank you Margaret, its great to hear that there are things out there which we might be able to build on.

1 week ago
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Dementia support work

Jo, thank you so much for sharing. It sounds like you are doing fantastic work to support people as much as you can in such difficult circumstances. Unfortunately as the Innovation team we are limited in what we can do to redirect funds, but we can try to scale existing low cost solutions, or build new ones. Is there anything you (or any other support workers out there) have found works well to support people through Coronavirus?

1 week ago
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Remembering the isolation rules

Thank you, Suzie, this is a challenge we have heard several times, which has also lead to problems out and about when people living with dementia has, for example, been shouted at when petting a dog on the street. I'd be interested to hear from people with personal experience of this challenge so we can understand the issue in a bit more detail.