Alzheimer's Society Innovation Hub

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COVID-19 and dementia - your challenges

25 Ideas
146 Votes
98 Comments
68 Subscribers

The coronavirus (COVID-19) pandemic has affected everyone's lives in ways we never expected. We know that for people affected by dementia it is especially challenging. 

This new situation requires new solutions, and it needs them soon. 

Use this space to tell us the challenges that people living with dementia and their carers are facing right now. Comment on other people's suggestions and vote on which ones are most important to you. The Alzheimer's Society Innovation team will then find the best ways to address them.

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  1. Mark Vallance
    93 pts
  2. Jennifer Bute
    82 pts
  3. Colin Capper
    79 pts
  4. Helen Hamblen
    74 pts
  5. Chris Maddocks
    68 pts

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Just put phone down to a carer who is struggling to cope with husband during the Co-Vid 19 period.   They are not always going out but husband who has dementia is agitated because he hasn't seen anybody - they normally have a few visitors.  Neighbours are doing the shopping for them and leaving it on the doorstep.  The couple are in their late 80's so not IT savy.  He has his coat on waiting at the front door and is not interested in the back door or the garden.   She has tried distraction...

Lee Allen
by Lee Allen
0 Votes
Comments 0
Lee Allen
Idea thumbnail

The UK Meeting Centres deliver support for people living with mild-to-moderate dementia and their families, helping them to cope with the transitions that dementia brings. Current guidance on minimising coronavirus transmission has led to UK Dementia Meeting Centres being suspended, with members following social distancing measures. Supersum, in partnership with the Meeting Centres are launching a call for bold new ways of helping their members stay creative and connected during social...

Tim Senior
by Tim Senior
6 Votes
Comments 3
Tim Senior
Idea thumbnail

My Grandma lives in a care home and has mild-moderate dementia. Because of coronavirus, the staff must all be dressed in full PPE. This means she cannot see their faces and so does not recognise the people around her. Being surrounded by people in such strange outfits must be very scary. Residents are also being confined to her room and only being allowed into the common areas in shifts. This prevents grandma from socialising with her friends, which is what she enjoys most. Although I...

Natasha Morgan
by Natasha Morgan (Admin)
6 Votes
Comments 2
Natasha Morgan
by
Natasha Morgan (Admin)
Idea thumbnail

One challenge for people living with dementia during the COVID crisis is that they are isolated and disconnected from their usual friends, family and carers. Many people living with dementia also struggle to use modern technologies and devices that the rest of the population are using to connect with each other online at this time. Isolation and loneliness can be mitigated through video calls (realtime person-to-person contact). Video allows a deeper communication with family, friends and...

Matthew Harrison
by Matthew Harrison
3 Votes
Comments 7
Matthew Harrison

Lots of people with dementia are afraid that being stuck in the house with limited social interaction and lack of opportunity to continue practicing existing skills (such as getting the bus independently) will mean they lose these skill by the end of coronavirus. Emphasis on losing ability to speak.

Alice Billin
by Alice Billin
2 Votes
Comments 3
Alice Billin

As mum is not so advanced with her Alzheimer's so  I am still working a few hours a week.  I work in the supermarket industry so the company is classed as an essential workers.  My dad who has vascular dementia, chronic heart failure & stage 3 kidney failure is 88 years old.  Mum who has COPD as well as Alzheimer's is 85 years old.  The NHS never contacted us to confirm self isolation so I am left not able to work as I cannot risk bring home the virus to them as they are so vulnerable...

Diana Whitlock
by Diana Whitlock
1 Votes
Comments 8
Diana Whitlock

Covid19 My Diary (as it was) 19th March 2020 It was only yesterday that Boris Johnson announced that all schools would close tomorrow. It is less than a week since this crisis dramatically escalated in this country to measures that even 2 weeks ago we could never have imagined. I woke this morning and heard a cockerel crowing nearby, and the blackbirds began their song - its was just breaking dawn, and everything seems so normal - but then the birds do not know, do they? We have self...

mary hyland
by mary hyland
1 Votes
Comments 3
mary hyland
Idea thumbnail

What about supporting people who are needing to ‘shield’ or ‘self-isolate’ but who don’t have access to The Internet? From previous projects and pieces of work, we have found that this can often be a challenge anyway, for example in terms of accessing information, but with the current pandemic and a lack of social interaction, this could make it even harder for people as a lot of the solutions for social interaction are using The Internet, such as video calls. How can we reach those who...

Natasha Howard
by Natasha Howard (Admin)
10 Votes
Comments 10
Natasha Howard
by
Natasha Howard (Admin)
Idea thumbnail

We know the difficulties in getting a dementia diagnosis for people at the best of times. We know in pieces of work that have taken place that it can be harder for people to receive a diagnosis. For example, in England, it is estimated that there are over 210,000 people with dementia without a diagnosis, and diagnosis rates in local areas range from around 50% to over 90%. What about people who are currently needing to self-isolate or ‘shield’ without a diagnosis of dementia? How can they...

Natasha Howard
by Natasha Howard (Admin)
1 Votes
Comments 3
Natasha Howard
by
Natasha Howard (Admin)

I am a live in informal Carer for a 79 year old lady with Alzheimer's. I've been living with her for the past 8 months. In the early days she could use her mobile phone to text me and even her PC to send emails. Today she can't do either. We live in Broadstairs in the isle of Thanet, Kent. just minutes from the beach and sea. it's a lovely setting. but here lies the problem, Isolation! until this last Summer season the surrounding Flats and homes were occupied by letting to Holiday makers,...

Mark Vallance
by Mark Vallance
1 Votes
Comments 15
Mark Vallance